Check out this great video by Tattuah Films.
MS Kenya a developed an information leaflet for patients and family member. Please feel free to share it far and wide!
My name is Lucia Ndolo and I have Multiple Sclerosis. Writing my story was inspired by the newly diagnosed people who suddenly seemed to increase. Reading my story will encourage them and show them it is possible to live with MS (Multiple Sclerosis) by taking it positively. The doctor I see, called Prof. Kioy, has also encouraged me to write my story.
Laura Musambayi’s story about MS.
The files in the archives of my memory are divided into pre- and post- MS. Only, not when I received my diagnosis so much as when the disability began to accumulate and the symptoms became vociferous. Continue reading “Becoming a Shapeshifter”
Denis Gitonga’s Story.
The journey begins in the year 2000 when I began to experience tremors. This prompted me see my physician who referred me to a neurologist. The neuro asked me to do a series of tests and the only thing that stood out was my blood pressure and my uric acid. I was given medication to treat this. The tremors stopped and the neuro advised that I should exercise, in case I wasn’t doing so already. Continue reading “My MS Journey”
Nellie Mugadi’s story about MS.
When I was in high school, I discovered something was not quite right. I woke up and prepared for class without any hitches. As I was dressing, I realised that I was battling to get a grip on the buttons on my blouse and struggling to fasten them. I thought I was having a nightmare. I walked to class and a friend stopped me to ask me if I was okay. I didn’t think anything was amiss. “Why are you asking? “You are walking like a drunkard,” she said in response. I simply ignored her and went to class. As I was trying to get a grip on my biro to write, I realised my hand was not cooperating. I went to the school nurse who didn’t know what was wrong with me. She called my dad and that’s when my trips to the hospital began. Continue reading “The Beginning of the Hospital Visits”
Steven’s Story About MS.
Everyone has a need for certainty of what tomorrow will bring. That tomorrow they will not be in pain, that they will have comfort and that they will be ok. Everybody also has a need for a-bit of uncertainty – a few surprises. Variety is the spice of life is it not? We want surprises that are good and that make us feel loved and appreciated. Problems are those surprises we don’t like and that bring discomfort to our lives. Continue reading “Steven’s Story”
Dr. Irene A. Oloo’s story about NMO.
It often starts with hiccoughs… and after each wave there’s the vomiting. Vomiting everything you try to keep down, including the anti-emetics and water. When the stress is gone, the hiccoughs, too, pass.
Years or months later, out of nowhere you wake up one morning and you can barely see through that eye; sometimes even both eyes. If you’re lucky enough, you’ll be told you have neuritis. If not, like me, they’ll just change your lenses or give you spectacles if you weren’t already wearing any. This phase, too, passes. Continue reading “Hope for life with NMOSD”
“Wake up and go buy milk and bread for breakfast. Hurry up! I am getting late for work!’’ yelled my elder brother who was housing me at the time. This was late 1979.
“But it’s still dark and shops are closed,’’ I answered politely.
“What! It’s 9am in the morning and you are…” I sensed him coming closer to me then suddenly, he exclaimed, “Charles, you can’t see!! Looks like you have lost your sight!” Continue reading “Battling with MS”